The Homy Patient Registry is a software developed by FH China Patient Network since July 2024 over 12 months and more than 530 hours. It is mainly used for the registration of basic medical records of patients, in-depth regular follow-ups of specific patients, and long-term cohort studies related to the growth and development of children.
The software was launched in August 2025 and will continue to release annual reports on patient survival status and conduct FH cohort studies in collaboration with clinicians and scholars to provide basic information for drug development.